Privacy Policy

Effective June 24, 2020


This Privacy Policy describes how Care Access Research LLC (“CARE”, “we”, “us” or “our”), a company with principal place of operations at 33 Arch St., 17th Floor, Boston, Mass., USA, handles Personal Information that we collect and receive from users through our websites (including, this or any other website), either automatically or information you provide.

CARE is committed to keeping your information safe and secure. We use your Personal Information only as permitted in this Privacy Policy. By using our websites, you agree to the collection and use of information in accordance with this Privacy Policy. Except as set forth in this Privacy Policy, your Personal Information will not be used for any other purpose without your consent. You may withdraw your consent to our processing of your Personal Information at any time by emailing us at [email protected] This privacy notice applies only to this or another CARE website. If you visit a CARE site or participate in a clinical trial, we will provide a privacy notice appropriate to that situation.

References in this Privacy Policy to "you" or "your" refer to both you and any person or entity on whose behalf you act, if any.

Purpose

CARE is a national network of clinical research sites. We build clinical research programs at physician practices across the U.S.A. and equip them with the resources necessary to offer clinical research as a care option for their patients. Through our Sites On Demand™ platform, sponsors can tap into patient populations in a wide range of therapeutic areas. We offer patients clinical research study opportunities for a variety of medical conditions. Users of the CARE websites include physicians, sponsors, contract research organizations (CROs), clinical research professionals, patients and other individuals who visit our websites.

We Do Not Sell Your Personal Information

CARE does not rent, sell or share your Personal Information with third parties or non-affiliated companies, except to provide services you have requested, when we have your authorization to share such information, or when we provide the information to companies or consultants working on our behalf under confidentiality agreements. These companies and consultants do not have any independent right to share your Personal Information.

Information We Collect and Use

The type of Personal Information that we collect and receive while you use the CARE websites or otherwise interact with CARE are described in this section and include both data that you voluntarily provide to us and data that we collect automatically when you use the CARE websites. For the purposes of this Privacy Policy, “Personal Information” means information about an individual, including but not limited to your name, address, telephone number, email address, city, state, zip code, date of birth, gender, and medical condition you share with us, as well as browsing and log data, such as internet “cookies” or IP addresses. Personal Information is defined broadly to include any information that can relate to an individual.

Information You Share with CARE

Data you share: If you choose to share Personal Information with CARE, you may submit additional information. This information could include your contact information or information about your health if you choose to share it.

How we use this data: We use this information to determine your eligibility for clinical trials and any other purpose described on the page where you share it. We do not share this information with any parties except our service providers.

Information That May Be Collected Automatically

Log Data: Like many website operators, we collect information that your internet browser sends whenever you visit the CARE websites ("Log Data"). This Log Data may include information such as your computer's Internet Protocol ("IP") address, browser type, browser version, and statistical information about your use of our sites, the pages of our websites that you visit, the time and date of your visit, the time spent on those pages and other statistics.

How we use Log Data: We use this data to troubleshoot on our sites and otherwise improve our services. This information is not used for marketing and is never sold.

Cookies, pixels, and similar technologies: We also collect information about your use of CARE websites through tracking technologies such as cookies. Cookies are created when a browser loads a particular website. A “cookie” is a unique text file that is transferred to your computer to track your interests and preferences and to recognize you as a returning visitor to our websites. (See the Cookie section below).

How we use data from cookies, pixels, and similar technologies: We use this information to track the functionality of our websites and to identify unique visitors. We do not sell this information or use it for advertising purposes. We also use cookies, pixels, and similar technologies to improve our service and other services and measure the effectiveness of our advertising and marketing campaigns. We do not use cookies or similar technologies to target you for advertising or other marketing activities. We do use this data to measure the effectiveness of our advertising and marketing campaigns. We never sell this data.

See the “Cookies, Pixels, and Similar Technologies section, below.

How We Share Your Information

At CARE, we are careful to limit the sharing of our data. Personal Information is shared only with service providers. A service provider is an entity or individual only permitted to use your data as we instruct them. For example, we use Google Analytics for some site statistics, but Google is not permitted to share this information with anyone else. We never sell your data. However, there are a number of circumstances in which CARE could be legally obligated to share data, including;

Lawful requests: We may be required to disclose your Personal Information in response to a legal process, for example, in response to a court order or a subpoena. We also may disclose your Personal Information in response to a law enforcement agency's request, or where we believe it is necessary to investigate, prevent, or take action regarding illegal activities, suspected fraud, situations involving potential threats to the physical safety of any person, to verify or enforce compliance with our Privacy Policy, or as otherwise required by law.

Corporate events: We may transfer your Personal Information to an entity or individual that acquires, buys, or merges with CARE, or our other business units. In such cases, your Personal Information would remain subject to the promises and commitments contained in this Privacy Policy until such time as this Privacy Policy is updated or amended by the acquiring party upon notice to you, as described in this Privacy Policy.

De-Identified and Aggregated Information

In addition to the uses of Personal Information described above, we may remove the identifiable parts of your information to create de-identified forms. De-identified information may be compiled with other data in aggregated forms for product improvement purposes. For example, the data we use for analytics to monitor the use of our services or to increase the functionality and user-friendliness of our websites is aggregated, meaning we cannot identify you or any other individual.

Storage and Security

CARE stores in a secure database the Personal Information that you voluntarily provide via our online forms. You may request access, changes, or deletions to your Personal Information and request information about our collection, use and disclosure of such information by contacting us at [email protected] We use best efforts to keep our records as accurate and complete as possible. You can help us maintain the accuracy of your information by notifying us of any changes to your Personal Information.

Opt-Out

If you wish to opt-out from receiving further communications from CARE, you may opt-out at any time by sending a request via email to [email protected] We will retain and use some of your information to avoid further contact with you.

Security

The security of your Personal Information is of utmost importance to us and CARE takes every reasonable and appropriate administrative, physical and technical safeguard to secure our websites and prevent unauthorized parties from accessing your Personal Information.

Third-Party Websites

CARE websites may contain links to websites outside of the company. Linked websites are not under the control of CARE. This Privacy Policy does not apply to linked websites outside the CARE organization. It is recommended that users review the privacy policy of each individually linked website. Moreover, CARE is not responsible for any disclosures to third parties to whom you choose to disclose your Personal Information directly. This Privacy Policy applies solely to information collected by CARE in relation to our websites.

Children Under 13

Our websites are not intended for children under 13 years of age. No one under age 13 may provide any Personal Information to us through our websites. We do not knowingly collect Personal Information from children under 13. If you are under 13, do not use or provide any information on our websites. If we learn we have collected or received personal information from a child under 13, we will promptly delete that information. If you have a concern related to children’s data, you may contact us at: [email protected]

United States Jurisdiction and Governing Law

We are located in the United States and our services and websites are directed only at users within the United States and subject to applicable U.S. local, state and national laws. Those who choose to access the websites from outside of the U.S.A. do so on their own initiative and understanding that their use of the websites are subject to U.S. laws and regulations.

Notices to Residents of California

California Online Privacy Protection Act notice:

1. Do Not Track — We currently do not support the Do Not Track (DNT) browser setting or respond to DNT signals. DNT is a preference you can set in your browser to let the websites you visit know that you do not want them collecting certain information about you.

2. Third Party Marketing — If you are a California resident then under Cal. Civ. Code § 1798.83, you may request and obtain from us once a year, free of charge, information about the Personal Information (if any) we disclosed to third parties for direct marketing purposes in the preceding calendar year. If you are a California resident and would like to make such a request, please submit your request in writing to us at the contact information provided below. In your request, please attest to the fact that you are a California resident and provide a current California address for your response.

California Consumer Privacy Act (CCPA) notice

We do not sell your data as defined in the CCPA (Cal. Civ. Code §1798.100). For all data, we use data collected online or otherwise for the following CCPA “Business Purposes”:

1. Auditing related to a current interaction with the consumer and concurrent transactions, including, but not limited to, counting ad impressions to unique visitors, verifying positioning and quality of ad impressions, and auditing compliance with this specification and other standards.

2. Detecting security incidents, protecting against malicious, deceptive, fraudulent, or illegal activity, and prosecuting those responsible for that activity.

3. Debugging to identify and repair errors that impair existing intended functionality.

4. Short-term, transient use, provided the personal information that is not disclosed to another third party and is not used to build a profile about a consumer or otherwise alter an individual consumer’s experience outside the current interaction, including, but not limited to, the contextual customization of ads shown as part of the same interaction.

5. Performing services on behalf of the business or service provider, including maintaining or servicing accounts, providing customer service, processing or fulfilling orders and transactions, verifying customer information, processing payments, providing financing, providing advertising or marketing services, providing analytic services, or providing similar services on behalf of the business or service provider.

We do not sell Personal Information or use it for marketing any other purpose including CCPA “Commercial Purposes”. You may contact us with any questions or requests related to your rights at [email protected]

Notice to Residents of Other States with “Do Not Sell” Laws

If you live in a state other than California with a law that gives you the right to opt-out of the sale of your Personal Information (e.g. Nevada), you should know that we never sell your Personal Information. You may contact us with any questions or requests related to your rights at [email protected]

HIPAA Compliance

HIPAA is the Health Insurance Portability and Affordability Act, which commonly applies to health data held by a healthcare provider or insurer. HIPAA does not apply to Personal Information that a person interested in participating in a clinical study has voluntarily provided for the purposes of determining eligibility for a clinical trial. CARE is not a “Covered Entity” or a “Business Associate” under HIPAA.

Changes to this Policy

e reserve the right to update or materially change our Privacy Policy at any time by posting a new version online, as indicated by the Effective Date at the beginning of the Privacy Policy. You should check this page periodically to review any changes to our Privacy Policy. Your continued use of our websites after we post any modifications to the Privacy Policy on this page will constitute your acknowledgment of receiving notice of the modifications and your consent to abide and be bound by the modified Privacy Policy.

Cookies, Pixels and Similar Technologies

We also collect information about your use of CARE websites through tracking technologies such as cookies. Cookies are created when a browser loads a particular website. A “cookie” is a unique text file that is transferred to your computer to track your interests and preferences and to recognize you as a returning visitor to our websites. The cookie is not connected to other Personal Information; it is used in aggregate form with other website users’ data in order to generate statistical reports on how people are navigating and using our websites.

We use third parties to perform site analytics tracking (e.g., Google Analytics). If you do not want your data used by third parties to perform site analytics, you can install the relevant opt-out browser add-on which you can find on the third party opt-out page https://support.google.com/analytics/answer/181881?hl=en. To learn more about cookies and other tracking technologies, including how to disable them, please visit http://www.allaboutcookies.org. Please note that some cookies are essential to the functioning of our websites and deleting or disabling them will reduce the websites’ functionality.

Our websites may use conversion tracking technologies (e.g., pixels) from third party platforms, such as Facebook and LinkedIn. These tools allow CARE and the third party companies to receive and collect data about the actions you take on our websites after you click on an ad that you see on one of these third party platforms. With its help, we can measure the effectiveness of our ads for purposes of statistics and market research, and we can target ads to you based upon the Personal Information and other information that you provide to us on our websites. You can opt-out of our collection and use of information for ad targeting by exercising your choices here: http://optout.aboutads.info/?c=2&lang=EN

For your convenience, we are also directing you to ad targeting opt-out links for Facebook and LinkedIn below:

Facebook - https://www.facebook.com/ads/preferences/?entry_product=ad_settings_screen#_=_

LinkedIn - https://www.linkedin.com/help/linkedin/answer/62931/manage-advertising-preferences?lang=en

Contact Us

If you have any questions, suggestions, or complaints about your privacy rights under this Privacy Policy, please contact us at: [email protected]

We are committed to resolving complaints about your privacy and our collection or use of your Personal Information in a timely fashion. If you submit a reasonable complaint or inquiry concerning your data privacy, we will promptly investigate your complaint and we will respond to the inquiry or complaint within 45 days. If it is justified, we will take appropriate remediation measures.

Copyright 2021 © Care Access Research LLC. All rights reserved.